Marfan Syndrome Information and Support Group | Marfan Foundation, The
Marfan Foundation, The
Location Name
Marfan Foundation, The
22 Manhasset Avenue, Port Washington, NY 11050
Eligibility
Open to anyone
Required documents
Call for details
Hours
Mon-Fri 8 am-4 pm
Website
https://www.marfan.orgApplication process
Call for details
Fees
None
Service area
United States
Provides information, peer support and educational materials for those affected by Marfan Syndrome Loeys-Dietz syndrome, Vascular Ehlers-Danlos syndrome (VEDS), and other genetic aortic and vascular conditions. The Foundation also supports research on these conditions all over the world through our research grant program and GenTAC, our research arm. Individuals and families can get connected and get the information they need through our Help & Resource Center, which can be reached through Marfan.org/ask.
Last assured
11/12/2025
Providing organization
Marfan Foundation, The
Provides information, referrals, peer support and educational materials to those with Marfan Syndrome.