Marfan Syndrome Information and Support Group | Marfan Foundation, The

Marfan Foundation, The

Provides information, peer support and educational materials for those affected by Marfan Syndrome Loeys-Dietz syndrome, Vascular Ehlers-Danlos syndrome (VEDS), and other genetic aortic and vascular conditions. The Foundation also supports research on these conditions all over the world through our research grant program and GenTAC, our research arm. Individuals and families can get connected and get the information they need through our Help & Resource Center, which can be reached through Marfan.org/ask.

11/12/2025